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EyeMelanoma.org

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    • Diagnosis and Treatment
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Up-to-date links to information and resources specifically for ocular melanoma patients and their families 

Up-to-date links to information and resources specifically for ocular melanoma patients and their families 

Established in 2011, EyeMelanoma.org's mission is to serve as a reliable, thorough, and concise reference guide for accessing Ocular Melanoma patient support resources and online educational materials for Uveal Melanoma and Conjunctival Melanoma

In 2025, it is estimated that 5 people in every 1 million in the United States will be diagnosed with a rare cancer that begins in the cells (melanocytes) that make the eyes' pigment (melanin). This type of eye cancer is called both Ocular Melanoma and Eye Melanoma. In the medical community and on the internet, the following terms are used to further identify the most common locations of this eye tumor:


  • The uvea — the middle layer within the eye that lies above the retina and beneath the sclera and cornea — is the site for eye melanomas approx. 85% of the time. Uveal Melanoma and Intraocular Melanoma (meaning "within the eye") are used interchangeably to indicate this location. Depending on where the tumor is in the uveal tract, the cancer will also be more specifically identified as either Choroidal Melanoma (approx. 90% of uveal melanomas), Ciliary Body Melanoma, or Iris Melanoma.

  

  • Approx. 5% of eye melanomas occur in the conjunctiva membrane that covers the white outer layer (sclera) of the eye and that lines the eyelid. A tumor located here is referred to as Conjunctival Melanoma.



Statistics compiled from American Academy of Ophthalmology; Text: EyeMelanoma.org

Illustration of eye anatomy with the parts of the eye labeled

Illustration provided with permission from National Institutes of Health's National Eye Institute

About This Website


      Patient Empowerment   •   Hope   •   Informed Decision Making



As healthcare professionals working directly with patients, both my sister and I always believed strongly in creating environments that support patient empowerment, hope, and informed decision making. We then found ourselves needing to personally apply this approach when she was diagnosed with ocular melanoma.


Later, with this same perspective in mind, EyeMelanoma.org was established in her honor in 2011 as a website that focuses specifically on providing patients and their families with up-to-date online links to useful resources and to reliable information on this rare cancer ... an organized, calming counterbalance to the frequent clutter and information overload on the internet.


This U.S.-based website continues to grow and be updated every month, aiming to address the informational needs of both those newly diagnosed and those many years along. Website methodology includes:


  • New ocular melanoma resources are added from trustworthy organizations around the world — primarily OM-related nonprofits, healthcare organizations, medical journal publishers, academic/medical centers, medical associations, and public health agencies. However, this information must be available in English so that it can be thoroughly vetted prior to adding.


  • All resources are neutrally listed, either alphabetically or in date order. Descriptions are quoted directly from the written material provided on their websites. Also, EyeMelanoma.org does not accept any advertisements or sponsorships.


  • Once listed, the resources and their links are re-verified throughout the year and are updated or removed as needed. The bottom of each page notes the date of the most recent addition or change.

  

  • In order to highlight the latest information on medical-related topics, only ocular melanoma educational videos, conference presentations, and medical journal articles created or published during the past two years stay listed on this website each month.



The EyeMelanoma.org website is very much meant to be a place of encouragement that highlights the entire OM community. When using the links to organizations, support services, educational videos, patient guides, medical journal articles, conferences, clinical trials, and the many other types of resources compiled here, hopefully you will be heartened by the crucial and expanding work being done in ocular melanoma research, treatment, and support by truly dedicated people.​


Wishing everyone strength and healing,

​Erica Barrett, MOT, MBA


In loving honor of my sister Paula

​Resources on One or More Pages Were Added or Updated on July 16, 2025

Any Feedback? Please Email: Erica@EyeMelanoma.org

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EyeMelanoma.org, a not-for-profit website established in 2011, does not contain any advertisements and does not accept funding/donations.

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