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EyeMelanoma.org

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EyeMelanoma.org

EyeMelanoma.orgEyeMelanoma.orgEyeMelanoma.org
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Up-to-date online information and resources for ocular melanoma patients and their families 

Up-to-date online information and resources for ocular melanoma patients and their families 

EyeMelanoma.org's mission is to serve as a thorough, concise, and reliable reference guide for accessing online OM educational materials and patient support resources

In 2023, an estimated 3,490* adults in the United States will be diagnosed with Ocular Melanoma, a rare cancer that begins in the cells (melanocytes) that make the eyes' pigment (melanin). Both of the terms Eye Melanoma and Ocular Melanoma are used more broadly to describe this type of eye cancer. There are also more specific medical terms that are used based on the location of the eye tumor:


  • The uvea — the middle layer within the eye that lies above the retina and beneath the sclera and cornea — is the site for eye melanomas approx. 95%* of the time. The terms lntraocular Melanoma ("within the eye") and Uveal Melanoma are used interchangeably. Depending on where the tumor is located in the uveal tract, the cancer can also be more specifically identified as either Choroidal Melanoma (more than 85%* of uveal melanomas), Ciliary Body Melanoma, or Iris Melanoma.

  

  • The other approx. 5%* of eye melanomas occur in the conjunctiva membrane that covers the white outer layer (sclera) of the eye and that lines the eyelid, so this is referred to as Conjunctival Melanoma.


* Statistics: American Society of Clinical Oncology

Illustration of eye anatomy with the parts of the eye labeled

Illustration provided with permission from National Institutes of Health's National Eye Institute.

About This Website


Patient Empowerment   •   Hope   •   Informed Decision Making



As healthcare professionals, my sister and I always believed strongly in creating environments that support patient empowerment, hope, and informed decision making. We then found ourselves needing to personally apply this same approach when she was diagnosed with ocular melanoma.


And so it was in her honor that EyeMelanoma.org was established in 2011 as a website focused specifically on providing patients and their families with online links to useful resources and to accurate up-to-date information on this rare cancer. 


  • This website continues to be actively maintained every month.
  • Throughout the year, new resources from trustworthy organizations (primarily healthcare organizations, health-related nonprofits, medical journal publishers, academic/medical centers, medical associations, and public health agencies) are added.
  • Existing resources and their links are re-verified throughout the year as well.
  • Resources are listed alphabetically or in date order with the accompanying descriptions quoted directly from their websites.


The EyeMelanoma.org website is very much meant to be a place of encouragement. I hope that when using the links to educational videos, patient guides, support services, medical journal articles, clinical trials, organizations, and the many other types of resources compiled here, you are heartened by the continuously expanding work being done in ocular melanoma research, treatment, and support by truly dedicated people.​ 


Wishing everyone strength and healing,

​Erica Barrett, MOT, MBA


In loving honor of my sister Paula

​Resources on One or More Pages Were Added or Updated on March 16, 2023

Email: Erica@EyeMelanoma.org

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This not-for-profit website does not contain any advertisements and does not receive funding/donations of any kind.

Information on this site should not be used as a substitute for professional medical care or advice.
Copyright © 2011–2023.  EYEMELANOMA.ORG.  All Rights Reserved.

EyeMelanoma.org has been providing current information on ocular melanoma since 2011.


This nonprofit website does not contain any advertisements and does not receive funding/donations of any kind. 


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