On this page, you will find links to many educational resources:
1) The following guides, written for patients, provide information on testing, diagnosis, and treatment:
Also available in French.
Also available in Spanish.
2) The following two guides were written for clinicians treating ocular melanoma but are available to everyone:
Also available in Spanish.
Free online registration is required to access these guidelines.
3) The following guide was written for patients considering or undergoing surgical eye removal:
"It is our hope that this [EyeRounds.org] guide will help patients better understand the different procedures used to remove the eye, how to best prepare for the surgery, and what to expect during the healing process."
"If your ophthalmologist suspects that you have ocular melanoma, he or she may recommend more tests of the eye. These may include Ultrasound of the Eye, Fluorescein Angiography, Fundus Autofluorescence, and Optical Coherence Tomography."
"Imaging tests may be used to find out whether the cancer has spread. [These may include] Ultrasound, CT Scan, MRI, or PET Scan." On the page, click on the individual tests to get detailed explanations on how each test works.
You can find any of your Blood Tests in the website's alphabetized database. Information on each test includes "What Is Being Tested?," "How Is the Test Used?," "When Is the Test Ordered?," and "What Does the Test Result Mean?"
DecisionDx-UM (Gene Expression Profile) Test — "It determines the unique activity of a set of 15 genes [in the uveal melanoma tumor. ...] This test can tell you whether your eye tumor falls into one of three classes, identifying the statistical risk of metastasis over the next five years. [...] Results are being used to develop personalized monitoring plans based on a patient’s metastatic risk." (Important Note: The decision to get tested is your own choice. If you are interested, you must inform your ocular oncologist for planning purposes. For this test, the tumor biopsy must be done BEFORE any radiation therapy.)
The following uveal melanoma tests can be ordered and run with the above test using the same single biopsy:
Uveal Melanoma Genetic Prognostic Test — "Multiple methods of testing are used to detect specific genetic abnormalities in eye tumor cells. [...] Genetic results indicate whether your chance of developing metastasis is high or low. Patients and their doctors can use this information to tailor their surveillance and treatment plans." (Important Note: The decision to get tested is your own choice. If you are interested, you must inform your ocular oncologist for planning purposes. For this test, the tumor biopsy can be done before any radiation therapy but might not be able to be done after it.)
Videotaped information explaining the parts of the eye and where ocular melanoma can develop:
"Basic Anatomy of the Eye" (4-minute overview)
Presenter: Guilherme Neri Pires, MD; June 18, 2020; Presented by UM Cure 2020 Project
"Understanding the Anatomy of the Eye" (37-minute presentation, including Q&A)
Presenter: Guilherme Neri Pires, MD; July 5, 2019; Presented by OcuMel UK
Drug Dictionary contains "technical definitions and synonyms for drugs/agents used to treat patients with cancer. Each drug entry includes links to check for clinical trials."
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