Share with others! EyeMelanoma.org quickly gets you to the info & resources you need.
Share with others! EyeMelanoma.org quickly gets you to the info & resources you need.
On this page, you will find links to areas of research that ocular melanoma patients could directly participate in:
"The INSIGHT Registry is a powerful opportunity for individuals [across the globe] with ocular melanoma and their family members to contribute directly to research that will enhance our understanding of ocular melanoma." Partners: A Cure In Sight, University of California San Francisco Eye Center, and the National Organization for Rare Disorders.
Click on "learn more" below to access registry website.
Also:
"The VISION Registry unites patients, caregivers, researchers, and physicians across the globe to share data, accelerate progress, and advance towards a cure." Partners: Melanoma Research Foundation's CURE OM Initiative, Massachusetts General Hospital Cancer Center, and Global Vision Technologies.
Click on "learn more" below to access registry website.
Also:
NOTE: As of 10/3/25, the link below continues to show the following statement: "The VISION platform is on a temporary administrative hold. If you are already enrolled in VISION you will be notified by email when the study is up and running again." Contact information is also provided if you are not already enrolled and/or have questions.
The OMNi academic registry of patients aims to "capture prospective data in order to characterize the natural history of uveal melanoma and provide data that will be used to support the development of novel therapies for this disease" [by] "capturing the complete course of this disease, from diagnosis, initial management, surveillance, and treatment of recurrent disease in a national and international setting."
Estimated study completion date: July 2026. Sponsor: Columbia University.
Locations in the United States (4): Massachusetts General Hospital, MD Anderson Cancer Center, Memorial Sloan Kettering Cancer Center, and Thomas Jefferson University Hospital
Other participating centers: Australia (8), Canada (1), Germany (1), and the UK (3).
Also: Informational video about the OMNi registry by Dr. Joseph Sacco (November 2020; 15-minute video). October 2024 OMNi poster presentation at Society for Melanoma Research International Congress.
"A Cure in Sight is proud to partner with [Rare Cancer Research Foundation's] Pattern.org [in September 2025] to establish the Insight Biobank, a critical resource dedicated to accelerating research in OM."
"By collecting and securely storing donated tissue, blood, and clinical data, we are building a foundation for breakthroughs in understanding, preventing, and treating this rare cancer. Through this collaboration, patients and families have the opportunity to directly contribute to lifesaving research. Every donation helps scientists uncover new insights into disease progression, identify novel therapies, and move closer to personalized treatment options. The Insight Biobank ensures that samples are collected ethically, stored responsibly, and made available only to qualified researchers who are committed to advancing the fight against ocular melanoma."
New information added to this webpage: October 3, 2025
All content and links to external sites re-verified on this webpage: September 5, 2025
Any Feedback? Please Email: Erica@EyeMelanoma.org
EyeMelanoma.org, a not-for-profit U.S.-based website, does not contain any advertisements/sponsors and does not accept funding/donations.
Medical Disclaimer: This site is for informational purposes only and does not provide medical advice.
Focus Area: Ocular Melanoma Eye Cancer — Both Uveal Melanoma and Conjunctival Melanoma.
Copyright © 2011–2025. EYEMELANOMA.ORG. All Rights Reserved.