OCULAR MELANOMA RESEARCH OPPORTUNITIES

"The INSIGHT Registry is a powerful opportunity for individuals with ocular melanoma and their family members to contribute directly to research that will enhance our understanding of ocular melanoma." Partners: A Cure In Sight, University of California San Francisco Beckman Eye Center, and the National Organization for Rare Disorders.

Click on "learn more" below to access registry website.

Also: 

Dr. Armin Afshar speaks about the INSIGHT registry (October 2022; 35-minute video).

"The VISION Registry unites patients, caregivers, researchers, and physicians across the globe to share data, accelerate progress, and advance towards a cure." Partners: Melanoma Research Foundation's CURE OM Initiative, Massachusetts General Hospital Cancer Center, and Global Vision Technologies.

Click on "learn more" below to access registry website.

Also:

Chad Kimbler, Jacqueline Kraska, and Dr. Marlana Orloff speak about the VISION registry (November 2022; 65-minute video). 

CURE OM's "2022 VISION Data Registry Report"

"A Cure in Sight Ocular Melanoma and the HonorHealth Research Institute Melanoma Clinic announce their collaboration for a Biorepository of Metastatic Uveal Melanoma tissue samples to be stored for future translational studies. [...] ACIS and the HonorHealth Research Institute are working together to develop a multisite biobank of metastatic uveal samples to be used in studies that will lead to a better understanding of the disease. Samples will be available to non-profit researchers based on application submission and approval from a scientific and biobank oversight committee. [...] Samples will be collected from patients at participating biobank sites, shipped to scientists at the HonorHealth Research Institute for processing, and stored in the biobank until use. It is anticipated that sample collection and storage will start in the second quarter of 2023. Samples will be available for use starting in 2024."

Ocular Melanoma Tumor Tissue Donations for Cancer Research (U.S.):

"Pattern.org enables cancer patients to directly donate their tumor tissue and medical data to research. Once you enroll, Pattern.org will link you to a specific research project studying your cancer. We are requesting only excess tissue from your surgery that isn’t needed for your medical care. Pattern.org will get in touch with your doctor and surgical institution to provide instructions for what is needed to fulfill your request for donation. There is no cost to patients to contribute tissue to research through Pattern.org."

Also: Barbara Van Hare of Pattern.org and an OM patient both speak about the Pattern.org project (March 2021; 20-minute video).