ORGANIZATIONS FOCUSED ON OCULAR MELANOMA

OCULAR MELANOMA NONPROFITS BASED IN THE U.S.

​>>  A Cure In Sight
"A Cure in Sight supports families who have ocular melanoma and focuses on research for a cure. Through public and private partnerships, we provide clear and reliable education information and access to a support community for patients and their caregivers." Contact Info

>>  CURE OM

"CURE OM is the Melanoma Research Foundation's initiative to increase awareness, education, treatment, and research funding for ocular melanoma while improving the lives of people affected by this disease." Contact Info

​>>  Ocular Melanoma Foundation
"The Ocular Melanoma Foundation is committed to accelerating and enhancing scientific research, advocacy, and awareness of ocular melanoma and to providing education and support to patients, their families, and healthcare professionals." Contact Info

In addition to their websites, learn more about these organizations: 

June 2024 presentation by each organization provides an overview of its activities and services. [Videotaped at Sidney Kimmel Cancer Center's "Uveal Melanoma Patient and Caregiver Educational Meeting"] 

—Ocular Melanoma Foundation (begin at video's 3:00 timestamp: 10 minutes)

—CURE OM (begin at video's 13:00 timestamp; 15 minutes)

—A Cure in Sight (begin at video's 43:00 timestamp; 15 minutes) 

​

OCULAR MELANOMA NONPROFITS BASED IN OTHER COUNTRIES

>>  Australasian Ocular Melanoma Alliance

"The Australasian Ocular Melanoma Alliance is a group of oncology and ophthalmology clinicians, scientists and patient advocates from across Australasia and New Zealand who are collaborating together to create new and innovative research to help patients with ocular melanoma." Contact Info

>>  MPNErare 

MPNErare is the Melanoma Patient Network Europe's special interest group for ocular melanoma and other rare melanomas. "MPNE's mission is to systematically address problems faced by the European melanoma community in a constructive, result-oriented, and evidence-based manner." Contact Info

>>  Ocumel Canada

"Ocumel Canada, an initiative of Save Your Skin Foundation, was formed to increase awareness, advance treatment options, and build a supportive community for those diagnosed with primary and/or metastatic ocular melanoma." Contact Info

>>  Ocular Melanoma UK
"Ocular Melanoma UK — previously known as OcuMel UK — aims to help ocular melanoma patients and their families by providing accurate, up-to-date information and emotional support via our website, helpline, and online forums." Contact Info

Ocular melanoma is a part of the following U.S.-based organizations' ocular oncology research support:

​​>>  Eye Cancer Foundation

"The Eye Cancer Foundation supports research efforts that will advance treatment methods and overall the rate at which eyes and lives are saved." Contact Info

​>>  Eye Tumor Research Foundation  

"The ultimate goal of the Eye Tumor Research Foundation is to improve patient care by improving methods of diagnosis and treatment of the affected patient." Contact Info

Ocular melanoma is a part of the following U.S.-based organizations' melanoma research support:

​>>  Melanoma Research Alliance

"MRA supports both individual investigator and collaborative team projects focused on translational, innovative research that will impact the prevention, diagnosis, staging, and treatment of melanoma in the near and intermediate future." [Provide 'uveal melanoma' in "keyword" field to filter search results on this grant awards page.] Contact Info

​>>  Melanoma Research Foundation

"Our research grants support the study of melanoma prevention, diagnosis, and treatment across the spectrum of the disease, including cutaneous, ocular, and mucosal melanoma. The MRF Research Program supports research across their entire career — from medical students to established investigators." [Select 'ocular melanoma' in "melanoma type" options to filter search results on this grant awards page.] Contact Info

In addition to the many institutions conducting scientific research on ocular melanoma, the following larger collaborations have been formed:

​>>  ​​Collaborative Ocular Oncology Group  (U.S. and Canada)

"The Collaborative Ocular Oncology Group (COOG) is the largest collaborative working group in North America of ocular and medical oncologists specialized in the treatment of patients with intraocular cancers, currently focusing on uveal melanoma. The COOG comprises more than 25 leading academic and private ocular oncology centers of excellence and has been continually funded by the National Cancer Institute for over a decade." Contact Info

​>>  Liverpool Ocular Oncology Research Group  (UK)

"A major strength of the Liverpool Ocular Oncology Research Group (LOORG) is this capability to join forces with ocular oncology clinicians, medical oncologists, pathologists, medical statisticians, basic scientists, and industry to ensure that the research it conducts addresses the key questions that aims to bring about improved survival and quality of life for ocular oncology patients." Contact Info

​>>  Ophthalmic Oncology Group  (Europe)

"The Ophthalmic Oncology Group (OOG) is an independent scientific group devoted to clinical ophthalmic oncology and related basic-science research. The aims of the OOG are to improve the practice of ophthalmic oncology in Europe; develop an internet-based data system to share scientific information in the field of ophthalmic oncology; promote education relating to ophthalmic oncology; conduct multicenter research studies; and organize conferences relating to ophthalmic oncology." Contact Info