Patients, family members, and caregivers will find several types of ocular melanoma support services compiled on this page, and all have no costs to participate:
"A Cure In Sight offers the Cure Companions program to provide the newly diagnosed, or those suffering from disease progression, with a 'veteran' OM companion to be a friend, to offer support, and to help navigate travel and treatment options."
"Imerman Angels provides peer-to-peer support services to melanoma patients and caregivers. We invite you to register to be matched with a Mentor Angel or to volunteer to be a Mentor Angel."
"Patient True Talk, a patient-to-patient registry, makes matches based on diagnosis and treatment parameters as well as geographical location. Patients and caregivers then have the ability to send secure messages directly to those whom are willing to share their experience."
"Join your fellow OMies for conversation and support on our Zoom meeting platform. We will meet each Tuesday evening at 7 p.m. Eastern Standard Time. Once you are in the Zoom meeting you can either use your device’s camera or choose not to." Information is shown at bottom of linked page.
"CURE OM partners with Thomas Jefferson University Hospital’s Oncology Social Work Program to offer virtual support groups to the primary and metastatic ocular melanoma community. These support groups meet the first Wednesday of the month via a virtual platform. Licensed social workers facilitate the groups in a private and confidential setting."
"The Cancer Support Community is here to help you by offering free support and coaching for cancer patients or their loved ones by phone and online. The Helpline is staffed by community navigators, resource specialists, and a Helpline navigator. [...] We provide help with coping in over 200 languages."
1-888-793-9355 [toll-free], Monday through Friday, 9 a.m. – 9 p.m. Eastern Standard Time. Saturday and Sunday 9 a.m. – 5 p.m. Eastern Standard Time.
Both Phone Support and One-On-One Online Chats Available.
"Information specialists at NCI's contact center are available to help answer your cancer-related questions whether you are a patient, family member or friend, health care provider, or researcher. We provide accurate, up-to-date, and reliable information that is easy to understand and free of charge." (This service is also available in Spanish at same phone number.)
1-800-422-6237 [toll free], Monday through Friday 9 a.m. – 9 p.m. Eastern Standard Time.
Both Phone Support and One-On-One Online Chats Available.
Facebook group —
"Private: Only members can see who's in the group and what they post." Information on joining is available at this link.
[Note; This group is also for family members.]
Online discussion forum —
"The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in." Information on joining is available at this link.
Facebook group —
"Private: Only members can see who's in the group and what they post." Information on joining is available at this link.
Facebook group —
"Private: Only members can see who's in the group and what they post." Information on joining is available at this link.
[Note: This group is also for patients.]
Online discussion forum —
"Online networking hub for OM patients, family, and friends. [...] The forum is completely private, meaning no one can see any content unless they are a member and signed in." Information on joining is available at this link.
Facebook group —
"Private: Only members can see who's in the group and what they post." Information on joining is available at this link.
[Note; This group is also for family members.]
Facebook group —
"Private: Only members can see who's in the group and what they post." Information on joining is available at this link.
Facebook group —
"Private: Only members can see who's in the group and what they post." Information on joining is available at this link.
[Note: This group is for patients.]
Listserv (discussion by email) —
Private: Only members can send/receive emails. Messages are routed through the listserv address so personal email addresses are never shown. Information on joining is available at this link.
[Note: This group is for patients and family members.]
Facebook group —
"Private: Only members can see who's in the group and what they post." Information on joining is available at this link.
Facebook group —
"Private: Only members can see who's in the group and what they post." Information on joining is available at this link.
[Note: This group is for patients and family members.]
Facebook group —
"Private: Only members can see who's in the group and what they post." Information on joining is available at this link.
[Note: This group is for ocular melanoma patients, family members, and caregivers. It is an English/French bilingual support group.]
Facebook groups —
"Private: Only members can see who's in the group and what they post." Information on joining is available at this link.
[Note: OcuMel UK, based in England, offers the following online support groups: "Patient Support," "Family Support," "Bereaved Support," "Knowledge and Strategy," "Welfare Support," and "Scottish Members."]
New information added to this webpage: July 4, 2021
Hyperlinks on this webpage most recently re-verified: June 7, 2021
Email: Erica@EyeMelanoma.org
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