Share with others! EyeMelanoma.org gets you quickly to the info & resources you need
Share with others! EyeMelanoma.org gets you quickly to the info & resources you need
You are not alone —
On this page, patients and their loved ones will find several types of ocular melanoma support services enabling direct communication, and all have no costs to participate:
Additional support resources can be found on EyeMelanoma.org's Patient Empowerment, Financial Assistance, and Vision-Related Support webpages.
"A Cure In Sight offers the Cure Companions program to provide the newly diagnosed or those suffering from disease progression with a 'veteran' OM companion to be a friend, to offer support, and to help navigate travel and treatment options."
"Imerman Angels provides peer-to-peer support services to melanoma patients and caregivers. We invite you to register to be matched with a Mentor Angel or to volunteer to be a Mentor Angel. The process of receiving a match takes just a few days."
"Patient True Talk, a patient-to-patient registry, makes matches based on diagnosis and treatment parameters as well as geographical location. Patients and caregivers then have the ability to send secure messages directly to those whom are willing to share their experience."
At these weekly Ocular Melanoma Support Meetings, "connect with other OMies for support, friendship, and sharing experiences. We will split into two groups, one for metastatic patients and one for non-metastatic patients."
These free meetings on Zoom are held every Tuesday of each month, 7 – 8 p.m. Eastern Standard Time.
"We invite you to join an upcoming CURE OM online support group, held monthly on the first Wednesday of the month from 1 – 2 p.m. Eastern Standard Time and the fourth Thursday of the month from 8 – 9:30 p.m. Eastern Standard Time for patients and caregivers. These once-a-month [free] support groups focus on diagnosis, treatment, medical updates, questions for peers, reflections, and more. The CURE OM online support groups create a safe space to meet and share with other OM patients. To join a group or learn more, please contact education@melanoma.org "
"Do you have ocular melanoma cancer or are you a new member? Join us to meet other people online" in the OcuMel UK Ocular Melanoma Community Support Group.
These free meetings on Zoom are held on the first Tuesday of every month from 6 – 7 p.m. UK Standard Time.
"Staffed by community navigators and resource specialists who have extensive experience in helping people affected by cancer. We provide guidance, resources, and support to cancer patients or their loved ones." [...] Over-the-phone translation support in over 200 languages."
1-888-793-9355 [toll-free], Monday through Thursday, 11 a.m. – 8 p.m and Friday 11 a.m. – 6 p.m.. Eastern Standard Time. Both phone support and one-on-one online chats are available during these hours.
"This [free] decision-support counseling program can help you prepare for an appointment in which you will be making a treatment decision. The program is available in English or Spanish for people with any stage of cancer. In a brief 1-hour session [at a select CSC affiliate location or by phone], an Open to Options Specialist can help you develop a personal list of questions and concerns that will help you and your doctor explore your situation and develop the best treatment option for you."
"NCI's Cancer Information Service can help answer your cancer-related questions whether you are a patient, family or friend, health care provider, or researcher. CIS is a free and confidential service. Our trained information specialists provide personalized responses to a range of cancer topics. [...] All services are available in English and Spanish."
1-800-422-6237 [toll free], Monday through Friday 9 a.m. – 9 p.m. Eastern Standard Time. Both phone support and one-on-one online chats are available during these hours.
"Our team includes a specialized physician assistant to help you navigate through the entire spectrum of care. Our melanoma medical expert can provide accurate answers to a wide range of melanoma questions on a confidential basis. [...] Please send a message through the [online] form or call the toll free number and leave a message [...] You can expect answers within 48 business hours." [Note: This free service includes ocular melanoma. See their webpage for types of non-urgent questions that can be addressed.]
"Do you have a specific, more medically-based question? If so, you can submit your question to the Melanoma Research Foundation's nurse by email. You can expect a personalized answer from our experienced nurse within 72 hours." [Note: This free service includes ocular melanoma.]
• Support group created in 2015. Information on joining.
• Support group created in 2020. Information on joining.
• Support group created in 2014. Information on joining.
• Support group created in 2011 by Eye Cancer Foundation. Information on joining.
• Support group created in 2019. Information on joining.
• Support group created in 2011 by Ocular Melanoma Foundation. Information on joining.
• Support group created in 2019. Information on joining.
• Support group created in 2016. Information on joining.
• Support group created in 2013. Information on joining.
• Support group created in 2016. Information on joining.
• Support group created in 2012. Information on joining.
• Support group created in 2016 by Melanoma Patient Network Europe. Language: English. Information on joining.
• Support group created in 2020 by Ocumel Canada. Languages: English and French. Information on joining.
• Support group created in 2015. Language: English. Information on joining.
• Support group created in 2017. Language: English. Information on joining.
• Support group created in 2017. Language: English. Information on joining.
• OcuMel UK offers the following support groups on Facebook, created in 2014 and 2015: "Patient Group," "Family & Friends," "Bereaved Support," "Knowledge and Strategy Group," and "Welfare Support,". Language: English. Click on individual links for information on joining.
• Support group created in 2016. Language: Swedish. Information on joining.
• Support group created in 2021 by Melanoma Canada. Language: English. Information on joining.
• Support group created in 2016. Language: Dutch. Information on joining.
New information added to this webpage: July 14, 2024
Links to all external sites re-verified on this webpage: September 30, 2024
Any Feedback? Email: Erica@EyeMelanoma.org
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