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EyeMelanoma.org

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      • Diagnosis and Treatment
      • Research Opportunities
      • Clinical Trials Search
    • Support
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EyeMelanoma.org

EyeMelanoma.orgEyeMelanoma.orgEyeMelanoma.org
  • Home
  • About
  • Organizations
  • Doctors
  • Diagnosis/Treatment
    • Diagnosis and Treatment
    • Research Opportunities
    • Clinical Trials Search
  • Support
    • Financial Assistance
    • Personal Support
    • Mental Health Topics
    • Patient Empowerment
    • Vision-Related Support
  • Conferences
  • Videos
  • Articles
    • Recent Journal Articles
    • How to Journal Search

ABOUT THIS WEBSITE

Patient Empowerment • Hope • Informed Decision Making


WEBSITE HISTORY —


As rehab therapists treating patients with medical issues, both my sister and I always believed strongly in creating environments that support patient empowerment, hope, and informed decision making. We then found ourselves needing to personally apply this approach when she was diagnosed with ocular melanoma.


Later, with this same perspective and drawing from additional experience in public health communication roles, I established EyeMelanoma.org in her honor in 2011 as a not-for-profit website that focuses specifically on providing patients and their families with up-to-date online links to useful resources and to reliable information on this rare cancer. (See "Website Methodology" section below for details.)


EyeMelanoma.org is designed to be a calming counterbalance to information overload and scattered results when searching on the internet for research, treatment, and support services. For 14 years, this U.S.-based website has continued to compile/post links every month, aiming to facilitate access to the informational needs of both those newly diagnosed and those many years along. Please spread the word ... EyeMelanoma.org is organized to quickly get the OM community to a wealth of important resources and information.


The EyeMelanoma.org website will also always be a place of encouragement. When using the links — to organizations, support groups and services, educational videos, patient guides, search tools, journal articles, conference presentations, and the many other types of resources compiled here — may you be heartened by the expanding and crucial work being done in ocular melanoma research, treatment, and support by truly dedicated people.​


Wishing everyone strength and healing,

​Erica Barrett, MOT, MBA

In loving honor of my sister Paula 


WEBSITE METHODOLOGY —


  • New ocular melanoma resources are added from trustworthy organizations around the world — OM-related nonprofits, healthcare organizations, academic/medical centers, public health agencies, medical journal publishers, and medical associations. However, this information must be available in English so that it can be thoroughly vetted prior to being manually added.


  • As part of EyeMelanoma.org's impartiality, all resources are listed either alphabetically or in date order.


  • Once listed, the resources and their links are re-verified throughout the year and are updated or removed as needed. The bottom of each page notes the date of the most recent addition or change.


  • In order to highlight the latest information on medical-related topics, only ocular melanoma educational videos, conference presentations, and medical journal articles created or published during the past two years stay listed on this website each month.


  • EyeMelanoma.org does not use AI to write any of its content.


  • A resource link's description in quotes is taken directly from the relevant information on its website. All content written by EyeMelanoma.org is shown on this website without quotation marks to differentiate the source. In addition, EyeMelanoma.org sometimes adds short clarifications in brackets within quoted material, as is common editorial practice. (For example, "This [free] guide ... .") 


  • EyeMelanoma.org does not accept any advertisements, donations/funding, or sponsorships.

Any Feedback? Please Don't Hesitate to Email Me Directly: Erica@EyeMelanoma.org 

  • Home
  • About
  • Organizations
  • Doctors
  • Diagnosis and Treatment
  • Research Opportunities
  • Clinical Trials Search
  • Financial Assistance
  • Personal Support
  • Mental Health Topics
  • Patient Empowerment
  • Vision-Related Support
  • Conferences
  • Videos
  • Recent Journal Articles
  • How to Journal Search

EyeMelanoma.org, a not-for-profit U.S.-based website, does not contain any advertisements and does not accept funding/donations.

Medical Disclaimer: This site is for informational purposes only and does not provide medical advice.

Focus Area: Ocular Melanoma Eye Cancer — Both Uveal Melanoma and Conjunctival Melanoma.
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