Share with others! EyeMelanoma.org quickly gets you to the info & resources you need.
Share with others! EyeMelanoma.org quickly gets you to the info & resources you need.
On this page, you will find links to Facebook groups that were created for people with primary and metastatic ocular melanoma and/or their families:
Each support group's official name is shown below in quotes and is listed in alphabetical order. All of these groups state that they are private; Facebook explains differences between public and private groups.
Additional no-cost psychosocial support resources can be found on EyeMelanoma.org's Personal Support, Patient Empowerment, Vision-Related Support, and Mental Health Support webpages.
>> "Conjunctival Melanoma and Squamous Cell Carcinoma of the Eye Group"
Private support group created in 2015. Approx. 300 members.
>> "Living With Ocular Melanoma — Adults 50 and Under"
Private support group created in 2020. Approx. 300 members.
>> "Metastatic Ocular Melanoma"
Private support group created in 2014. Approx. 2,800 members.
>> "Natural MUMies" [metastatic uveal melanoma]
Private support group created in 2020. Approx. 550 members.
>> "Ocular Melanoma and Eye Cancer Patients Forum"
Private support group created in 2011 by Eye Cancer Foundation. Approx. 5,300 members.
>> "Ocular Melanoma Community — A Group For Family, Friends, and Supporters"
Private support group created in 2019. Approx. 1,400 members.
>> "Ocular Melanoma for Dummies"
Private support group created in 2024. Approx. 700 members.
>> "Ocular Melanoma Friends & Family"
Private support group created in 2011 by Ocular Melanoma Foundation. Approx. 3,200 members.
>> "Ocular Melanoma Man Cave"
Private support group created in 2019. Approx. 100 members.
>> "Ocular Melanoma Mets Group"
Private support group created in 2016. Approx. 1,200 members.
>> "Ocular Melanoma Support for Spouses, Significant Others, and Caregivers"
Private support group created in 2013. Approx. 450 members.
>> "Ocular Melanoma Widows/Widowers"
Private support group created in 2016. Approx. 50 members.
>> "Ocular (Uveal) Melanoma Support"
Private support group created in 2012. Approx. 1,500 members.
>> "Uveal (Ocular) Melanoma Patient Support Group"
Private support group created in 2019. Approx. 350 members.
>> "MPNE Rare — Ocular, Mucosal, Acral, and Paediatric" (Europe)
Private support group created in 2016 by Melanoma Patient Network Europe. Language: English. Approx. 550 members.
>> "Ocular Melanoma Connect/Connexion Mélanome Oculaire" (Canada)
Private support group created in 2020 by Ocumel Canada. Languages: English and French. Approx. 250 members.
>> "Ocular Melanoma Support Western Australia"
Private support group created in 2015. Language: English. Approx. 75 members.
>> Ocular Melanoma UK's Support Groups (United Kingdom)
Private support groups created in 2014 and 2015: "Patient Group" (approx. 700 members), "Family & Friends" (approx. 250 members), "Bereaved Support" (approx. 75 members), and "Knowledge & Research" (approx. 275 members). Language: English.
>> "OcuMel Australia and New Zealand Ocular Melanoma Support"
Private support group created in 2017. Language: English. Approx. 375 members.
>> "OcuMel Irl" (Ireland)
Private support group created in 2017. Language: English. Approx. 150 members.
>> "Ögonmelanom" [Translation: Eye Melanoma] (Sweden)
Private support group created in 2016. Language: Swedish. Approx. 100 members.
>> "Uveal Melanoma Support Group" (Canada)
Private support group created in 2021 by Melanoma Canada. Language: English. Approx. 450 members.
>> "Voor Oog Melanoom Patiënten" [Translation: Ocular Melanoma Patients] (Netherlands/Belgium)
Private support group created in 2016. Language: Dutch. Approx. 275 members.
New information added to this webpage: December 5, 2025
All content and links to external sites re-verified on this webpage: September 5, 2025
Any Suggestions? Please Email: Erica@EyeMelanoma.org
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Focus Area: Ocular Melanoma Eye Cancer — Both Uveal Melanoma and Conjunctival Melanoma.
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